NRAS Logo
Logged in as: pedro-pmc Search | Moderate | Active Topics | My Profile | Members | Logout

New Topic Post Reply
Humira Options
Previous Topic · Next Topic
cozzycoz
#1 Posted : Sunday, September 12, 2010 10:44:10 AM Quote
Rank: Advanced Member


Groups: Registered

Joined: 12/10/2009
Posts: 89
Location: Braintree, Essex

Hi everyone long time no speak,

Iv been enjoying my summer with having had two depos at the end of july, I felt great,enjoyed all the things that had been difficult :) I had my funding approved the day before my birthday(great presant) for Humira, now im waiting on first delivery on thursday, so excited and nervous at the same time! glad thats it's coming as toes and wrist have started to get much worse again!

I was thinking of seeing if possible to get more depo before the humira kicks in as know can take a while,or do you think this is not an option while waiting to see if Humira works???

I know that my R.A is severe but was soooo enjoying the effects of the depo,hate feeling useless as started back to work, don't like to let people down! the first few days eveyone commented on how well I looked (also not taking sulferzalizine which is great ,still mtx but don't work on its own with me) even saying I didn't have the pain in my face!!! but as last week rolled on I stared falling apart again, but tryed to hide it! a collegue said Im should be mentally strong and say no but I find this so hard (also not mentally strong!

Well just wanted to share with you how good my summer had been as always good to get good news hay :/


love corinne xx
Back to top
MSN  Report Abusive | Report SPAM
Odette
#2 Posted : Monday, September 13, 2010 10:49:55 AM Quote
Rank: Newbie

Groups: Registered

Joined: 7/6/2010
Posts: 4
Hi there

I hope you don't mind me asking how long it took you to get funding for the Humira.
My daughter aged 23 has been on MTX, Sulphasalazine and hydroxychloquine for 6 months and has an appointment with her consultant to discuss the possibilty of Biologic drugs.
Her RA is also severe and unresponsive to the drugs. She is worried about losing her job as her mobility is so poor and ,like you, doesn'y want to let people down.
She lives in North London.
Hope you get good results from your Humira.
Take care
Odette
Back to top
 Report Abusive | Report SPAM
smith-j
#3 Posted : Monday, September 13, 2010 12:54:04 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 12/3/2009
Posts: 714
Corinne - I am not sure whether you should have another depo injection so close to your last ones. The best thing to do is ask your Rheumy Team. Mine are not keen on giving out too many injections, as steroids in themselves can cause health problems. I hope that the Humira kicks in quickly for you. I have been taking it for the last twelve weeks. It is really easy to inject if you use the pen. I grab a wad of stomach fat (plenty in my case) and inject and I do not feel it at all. I have had no reaction on the site either.

Odette - I was diagnosed with RA 18 months ago and after trying all sorts of drug combinations, they decided to move me onto biologics after the twelve months. It took five days from me seeing the Consultant to getting the funding authorised. It did take longer for the home delivery team to actually deliver the drug (about 4 weeks). I live in Shropshire. I do think it is dependent upon where you live. Hopefully your Daughter's local Primary Care Trust will be as forthcoming with the funding as mine.

Take care

Jackie
xx
Back to top
 Report Abusive | Report SPAM
Kathleen_C
#4 Posted : Monday, September 13, 2010 2:33:40 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 12/3/2009
Posts: 1,689
Location: Durham
Hi Corinne,

My rheumy doesn`t really like to give too many depos - if I`d been given a couple in July, she would say no more until 4 or 5 months, as they do bring their own problems, though we all love the depos when they work!!

Good luck with the humira - I`ve been on it for 3 years now, and it`s worked better than anything else I`ve had. I use the epi-pen, and it`s very straightforward, so I hope it works for you.




Odette - I was on DMARDs for the first 18 months after diagnosis, none of which worked, then I was finally put onto a biologic.From being put forward by my rheumy to taking delivery of my first humira pens was about 4 or 5 weeks, and the Healthcare nurse came about 3 days after delivery to do my first injection. As Jackie says, I think it all depends where you live as to how quickly the whole process takes.

Kathleen x
Back to top
 Report Abusive | Report SPAM
Lorna-A
#5 Posted : Monday, September 13, 2010 3:20:04 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 3/8/2010
Posts: 914

Hi Corinne,

Does it not depend on how bad / active your RA is, re: the amount of Depo you get. I remember too well just how bad I was at the start, I was given 120mg Depo and then after about 4 weeks later I was given another one, then about 4-6 weeks later another one. I was meant to get a forth as well but it turned out I did not need it. I hope your Humira is a success for you. I was on the triple therapy and keep really well now as long as I don't do too much. Thinking about you, take care. Lorna Smile
Back to top
 Report Abusive | Report SPAM
cozzycoz
#6 Posted : Monday, September 13, 2010 6:48:33 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 12/10/2009
Posts: 89
Location: Braintree, Essex

Thanks everyone,

Good advice as always,I didnt contact nurse about the depo as was thinking that I would like to know how long the Humira is going to take to work so at least I can judge it better without depo's

Lorna... think your right prob depends how bad things are! as had the two depos at the same time(things were v.bad at time) also my toes were more bearable today although used stick(which I hate) but got away with it as we were dressed up at school for Rohal daul day, so I was Willy wonker :) as were several other teachers/children.

Odette..... It took from 29th july,when they applyed for funding till 2nd sep when I was told it had been excepted, 9th sept I had call to arrange for delivery of Humira,it is coming this thursday 16th, then I was told a nurse will contact me in the next two working days after, which will take me into the following week!!! so bout 4/5 weeks in all I guess!! then not expecting to see much change for a few weeks but fingers crossed it works well as it has for many others on this forum.

I hope your daughter gets her meds sorted soon :)

Jackie... thanks for letting me know how easy it is, that has made me feel less worried about the whole thing,sometimes I think the thought of it is worse Scared

corinne xx
Back to top
MSN  Report Abusive | Report SPAM
kells34
#7 Posted : Tuesday, September 14, 2010 9:43:40 AM Quote
Rank: Advanced Member

Groups: Registered

Joined: 12/7/2009
Posts: 53
Corinne
I hope the humira works as well for you as it has me and many others. I've been taking it for 3 years now and the change in my mobility, fagtigue etc has been incredible. I was on the triple combination methotrexate, sulp, hydrox and it worked slightly but nothing compared to the anti tnf drugs.
Good luck with it Corinne x
Kelly
Back to top
 Report Abusive | Report SPAM
Odette
#8 Posted : Wednesday, September 15, 2010 3:36:27 PM Quote
Rank: Newbie

Groups: Registered

Joined: 7/6/2010
Posts: 4
Thank you everyone for the replies.
It is good to be able to get advice and encouragement from you all.
Unfortunately funding isn't going to be straightforward as the DAS score only takes into account the joints above the knee and her ankles and knee are the problem.
She finds great difficulty walking on swollen , deformed, painful ankles and a swollen knee and has had this problem for nearly a year.
The consultant is going to apply for funding anyway and say she is a special case but don't know whether she will get it.
She will need to decide which anti TNF drug to apply for so any advice on this would be appreciated. Humira seems to be very effective for most people.
I go with her to see the consultant in 2 weeks and then the process for funding should go ahead.
Good luck with the Humira tomorrow Corinne!
Odette
Back to top
 Report Abusive | Report SPAM | Edit by user: Wednesday, September 15, 2010 3:38 PM | Reason: Not specified
Users browsing this topic
New Topic Post Reply
Forum Jump  
You can post new topics in this forum.
You can reply to topics in this forum.
You cannot delete your posts in this forum.
You can edit your posts in this forum.
You cannot create polls in this forum.
You cannot vote in polls in this forum.

SoClean Theme By Jaben Cargman (Tiny Gecko)
Powered by YAF 1.9.3 | YAF © 2003-2009, Yet Another Forum.NET
This page was generated in 0.153 seconds.